4th Post-Op-Iversary!

Four years ago today I had major open abdominal surgery to move my left renal vein down a little so it would no longer be compressed by my aorta and superior mesenteric artery (SMA), a condition I was born with but that doesn't manifest until your 20s or 30s typically. This condition is interestingly called the Nutcracker Syndrome, because the left renal vein is like a nut being cracked by the aorta and SMA. Symptoms vary but mine were extreme stabbing pain in my lower left pelvic area during menstration, caused by secondary internal varicose veins on my left ovary and the left side of my intestines and also chronic daily achiness from standing or sitting for too long. 

I feel extremely lucky to have had such amazing results after this surgery. The daily achiness virtually gone. The monthly menstrual stabbing pain minimized to a couple of painful hours rather than days. It was like I was given my life back. Early detection played a big part though. The first really bad pain occurred in January 2012, although I had started to feel increased nausea and dizziness the fall before that. Within 8 months, I was having the necessary surgery to open up my renal vein so that the secondary varicose veins could retreat or retire because they're no longer needed. Luckily for me, my body didn't have that much time to create millions of varicosities thankfully. 

I chose to have open surgery over having a stent placed in my renal vein because I knew I wanted to be a mom someday and the stent seemed way too risky with the movement of organs during pregnancy. I was not even married at the time but I knew in my heart that I needed to plan ahead for my future babies. I was however dating an amazing and caring man who is now my husband and father of our baby girl who is due in less than a month. :)

I'm also very thankful for not having a stent put in because my body told me shortly after the surgery how much it despises foreign metal objects by slowly spitting out each of the metal stitches that were placed during the open surgery. I don't know though if my body would have done so if I hadn't had a post-op infection in which the ER doctor, a week after being released from the hospital, had to reopen my wound and let it heal from the bottom up. This was to take about 6 weeks to heal, they told me initially. It didn't heal completely until all the metal stitches were spit out 4 months later. The wound had to be cared for twice or three times per day which my loving boyfriend did before and after work everyday for several months until I was strong enough to clean the wound myself. I couldn't bring myself to look at the open wound for about a month. It was very grotesque and upsetting. The pain of packing the wound with dry gauze multiple times a day was unbearable. This was to stimulate the healing process so the wound could heal from the bottom up, but boy was it awful! 

Soon after the wound had been reopened, one doctor was explaining the process and one term sounded like fireworks or something similar but my dear mom, who was caring for me after my surgery, couldn't remember the exact term so she called it a sparkler. And this is how my wound/scar got her name, Sparkle. It really helped to be able to call this big open area on my belly a nice name like Sparkle. She is still affectionately called that today, 4 years later. 

The whole healing process created a lot of anxiety and PTSD in me. Counseling and life coaching have helped immensely. And I'm so grateful to report that I'm now 36 weeks pregnant with our first baby and have had minimal pain, hardly any of which have anything to do with the Nutcracker or residual pelvic varicosities. My husband and I also feel blessed in a way to have experienced such intense pain together because I always said the pain was preparing me for labor and now we're only weeks away from meeting our sweet baby girl who we hope to have naturally at a birth center. I never thought it'd even be possible with my past medical history but everything shows that I'm healthy and my body likes being pregnant. I feel so lucky to be able to experience such awe in creating a baby human being and be able to carry her for nine months while she develops. In all our checkups with the midwife, the baby seems very healthy and is growing so well. :)

It's been a long road but we're now going to be parents within the next month and we're overjoyed with this incredible blessing! Happy, grateful tears stream down my face as I type this. What an amazing journey!

 

 

Maternity photos by Kristina Slaney of Family Work Life at: https://familyworklife.myportfolio.com 

Remembering Gratitude, Courage and Vulnerability

"We cultivate love when we allow our most vulnerable and powerful selves to be deeply seen and known, and when we honor the spiritual connection that grows from that offering with trust, respect, kindness and affection."  ~Brene Brown

It's hard to believe sometimes but in a little less than a month, it will have been two years since my surgery. Sometimes it feels like much longer ago than that. Other times, I feel like it could have happened just last week when the traumatic memories of agony and pain come flooding back all the sudden. Thankfully this doesn't happen very often anymore. But I have discovered how very sensitive I am to memories. And I think this led me to a recent epiphany. What if instead of remembering automatically all the difficult, painful, and sad feelings I experienced during that time in my life, I choose to remember and retrain myself to focus on the feelings of elation that I felt right after I woke up from surgery. When I think back of the euphoria I felt in that moment, how relieved and incredibly grateful I was right after I awoke from surgery, after I asked if the surgery had been successful, if the doctors had been able to move my left renal vein away from my aorta, which had been compressing my renal vein to the point of extreme pain and a network of internal varicose veins above my left ovary, and that my vein had not collapsed, gracias a Dios, my heart grows and I remember all the outpouring of love and support I received from family and friends and the amazing dedication and unconditional love and honor that my mother and my husband gave me before, during and after my surgery and long road to recovery. 

This is essential in reframing our past. In not being afraid to "go there" when remembering of a particular time in our life. I don't want to be afraid to think about the time when I fought the Nutcracker Syndrome and won! I want to feel proud! And grateful! I don't want to feel bitter and angry about all the time and energy I lost as a result of the surgical infection I got. I want to remember what an awesome job the doctors did do of transporting my delicate vein to a safer location inside me, so that now nearly 2 years later, I can do pretty much whatever my heart desires. I am no longer held back by physical limitations or pain. Only by the fear of remembering. Only by my own self-doubt. Only by the lack of practice. But those are things I can control. I can reframe what I remember of this period in my life. I can gain confidence when I remember how much courage and strength I showed during that time. And I can get back out there and start moving more again, getting back into the habit of exercising and practicing whatever my heart desires. Little by little. Like I've been doing with my writing this year.

So my nugget that I take away from this epiphany is that if I find myself going back in time and remembering something--whether it be a wonderful memory or a painful one--I must challenge myself to look around in there for just one moment when I felt grateful or loved or joy, and remember that moment above all others. I did not feel a lot of joy during my recovery. I did not have a lot of fun, even though my dear mom would take me to beautiful, lovely places to cheer me up. (I love you, Mom! You are my hero!) I did not always remember how incredibly grateful I was for having a successful surgery, because I was under so much distress from a painful recovery. But now that I have been fully recovered for 1 year and 7 months (because it took me 4 full months to heal the wound left from the infection, aka. Sparkle) and I can look back on all this from a distance, I choose to realize and own my own strength, courage, gratitude, faith, love, and tenacity. 

I sometimes foresee the wisdom and goodness I will gain from a challenge before I actually go through a difficult time. Kind of like seeing yourself at the finish line before you have even started training to run the marathon. And this has helped me move through challenging times with the comfort and faith that I will grow into myself more deeply, practice vulnerability and open my heart up to receive all the love that comes to me, and be able to touch more lives in the end.

Thank you for reading my words. I would love to hear your stories of courage. Share below or on my Facebook page or email me at maritakane@gmail.com.

Self-Esteem is a Delicate Muscle That Must Be Trained Constantly

I think having a positive self-image might just be one of the most powerful tools we can invest in to ensure true contentment and kindness in this world.  I recognize the importance of building self-esteem, especially as a chubby, four-eyed child who could be a bit clumsy and wasn't involved in any team sports, but then I found dance. And dance literally changed my life. The summer before I started high school, I became a part of a team of strong young women, in the not-always-well-known dance sport of colorguard, through a jazz dance class first and then through four years of choreography, stretching, pilates--before it was popular, and performing together all year round, and these women helped lift me up throughout high school and many of them still do, either virtually or on the occasional visit with dear, old friends. I was given the opportunity to cultivate my creativity and express myself through movement and that helped me feel better about myself in so many ways. I found my flow.

Although I haven't performed in a colorguard since my freshman year in college, dance has continually touched my life and the experience of expressing my creativity through movement has helped me overcome many obstacles. When I begin to feel lost, I can almost always pinpoint the feeling beginning when I stopped dancing.

So you can imagine how difficult it was then two years ago when my regular zumba classes at the gym began to make me nauseous and cause pain to rattle down the left side of my body. It was horrifying. Maybe almost worse than having to actually live with the chronic pain, because dancing is my life force.  I considered chair dancing and looked into Nia and other dance forms I could possibly try while suffering from this pain, but it can be very difficult to get motivated when your mind is running wildly with all the possible explanations for what's going on inside your body and how you can fix it. I lost my rhythm and my self-esteem has suffered greatly as a result.

But like mangos, I CRAVE dance, and my body and mind and spirit constantly cried out for movement throughout my recovery, which doesn't just include the "recovery" of 6 weeks that the doctors talk about--it includes the last year and a half while I've been slowly regaining my strength and spirit after going to hell and back.

Last week I finally couldn't take it any longer and although I don't have a gym membership and have a hard time getting motivated to leave the house after I get home in the evenings, I decided to just go for it and start dancing in our living room with our cable company's available fitness videos. And now only after a week, I'm already looking forward to coming home in the evenings to put on my pretty pink coin scarf and shake my body to belly dancing for 15 to 20 minutes in the living room. It doesn't sound like a lot of time, but it's just what I needed to help me feel more alive and more in touch with my creative spirit. All the writing and picture-taking and art that I create help fill me with positivity, but they truly can't compete with the sheer joy that dancing brings me and has always brought me.

So I've really begun to realize that our self-esteem is a very fragile, delicate muscle that must be trained and massaged and worked or expressed constantly in order to thrive, just like our other muscles. I feel lucky to have found an activity that helps me work this all-important muscle.

Recognizing My Wings

I went through an amazing transformation about 3 years ago, when my whole life--everything as I knew it--was flipped upside down by a surprise end to a 10-year relationship.  I look back on my healing process in awe now and how I literally came out of my shell and found my wings.  I followed a lot of great advice, followed my heart, gave my creativity time to thrive through regularly dancing and dancing in many different forms—zumba, belly dancing, pole dancing, burlesque dancing, salsa dancing, you name it!—spent a great deal of quality bonding time with friends for support, fun and inspiration, and grew spiritually, because I remained open to all the changes happening and I remained hopeful that one of my life’s most precious goals of becoming a mother and having a family would still happen, despite turning 32 when all this happened.  If I let the gremlins take over, as Brene Brown calls them, I would think that there wasn’t possibly enough time to meet someone new, grow as a couple, get married, and start a family before I got "too old."  But deep down, I KNEW in my heart and soul that it WAS possible and that I would be a mother and create a family.  And lo and behold, as my wings grew bigger and even more brilliant and beautiful, and my self-esteem thrived amidst my creativity and budding friendships, I met my future husband and father of my children. I believed it, and it happened.  We were married just 2 years after first meeting and have now been married 10 months.  We are hoping to start a family later this year.  My vision is becoming reality!

While dating and growing as a couple, we went through some very serious health trials—4 surgeries, one of which being major, abdominal surgery to fix a vein that had been compressed near my left kidney, and causing daily achiness and pain whenever I danced or walked—two of my most favorite pastimes and stress relievers. My husband, who was my boyfriend at the time, nursed me back to health, coming to my mom’s house where I was recovering to change my surgical wound’s dressings, because it got infected and was tracking, so A LOT of pain and suffering occurred after that surgery, but A LOT of unconditional love occurred too, both from my husband and my dear mother, who fed me and took care of me for a month after the surgery and then took turns with my husband changing my wound's dressings for several more months.  I knew without a doubt while going through that health crisis that I had found my soulmate and my future husband.  After my wound healed, we got engaged a few months later and were married 6 weeks after our engagement!  It was a truly magical time, filled with family and close friends, creativity and planning, and coming together to create the most love-filled wedding day.

Since then, we have been adjusting to living together, since we didn’t move in together until after our wedding, and learning about each other at a deeper level.  On a personal level, I have still not fully recovered emotionally from all the health crises I went through two years ago.  All of last year, physically, was dedicated about regaining my strength and energy, but I struggled constantly to keep up with my old ways of dancing regularly and walking all the time.  I can dance and walk now.  But I don’t do it as regularly as I used to or as much as I’d like to.  I think I have a lot is fear of feeling pain again, since my favorite activities triggered the pain and achiness and nausea when I was going through my health crises.  And I’m afraid I’ve fallen out of the habit of exercising daily.  I still crave it, but now I feel frustrated and almost desperate to find a way to be active daily again.  I try to go for walks at lunchtime and I do mini-yoga sessions in my living room from time to time, but nothing as regular and as invigorating as my zumba and other dance classes from 3 years ago.  I know A LOT of my healing process and healing secrets from that time were through my dancing.  I gained a sense of confidence that I hadn’t had in a long time and I also opened up through the process of dancing. After nearly every zumba session, I would feel inspired to write and write about some epiphany or important reflection that came to me during the dancing.  I miss that.  I feel almost disappointed with myself for not having kept up with it.  But my inner voice chimes in and reminds me that I physically COULDN’T for quite awhile, due to the pain triggers and then surgery recovery, which was much longer than anyone had anticipated because of the surgical infection and prolonged wound recovery.  Four months of open wound care can take it out of you.  It felt at times as if it sucked the energy and life force out of me.

I think what has happened is that my beautiful, brilliant wings became transparent during my health crisis and recovery, and although I can’t see them as easily now, I must learn to recognize them again. Recognize my incredible journey.  Recognize how far I’ve come and all I’ve been through and learned to get here.  Be kind to myself. Love myself.  Love my transparent wings.  Love my indented scar. Love my rolly belly.  Love my moods and how they can swing from one day or moment to the next.  Love my joy.  Love my enthusiasm and excitement and ZEST for life when it comes to me, sometimes all of the sudden, like a big bolt of positive, fun energy! Even love my fearful nature.  Even love my anxiousness about the unknown.  Love and accept ALL the parts of me, not just the beautiful, which are easier to love, but the painful and difficult parts as well, where the love is needed the most.

I went to a wonderful talk at the Seattle Life Coach Training school last Friday and the inspiring speaker, Sherra Grasser quoted the school's founder, Richard Seaman in his upcoming book, with a profound statement: "Apply LOVE {here}."

Apply LOVE {here}. {There}.  {Everywhere}.

Start small.  And follow my own advice.  I desperately want to get back into being active again and dancing. But I also know that it’s not practical or realistic to think I can just jump back into my 2-3 times a week at the gym for zumba schedule again.  I need to start small. Something though.  Tonight before cooking or going through boxes or writing this blog or even relaxing and vegging on the couch, I needed and most importantly WANTED to try a dance workout on TV in my living room, and I DID IT! 20 minutes of belly dancing felt so energizing and empowering! And I've hung my belly dancing coin scarf, that I wore around my waist for extra motivation, by the thermostat so it is clearly visible and will remind me to try a little belly dancing every night after work.

Start small.

Apply love everywhere.

Recognize the richness of my journey.

Love my transparent wings.

On Top of The Mountain-One Year Post-Op

I feel incredibly joyful today to be free of pain & suffering, one year after my major open, abdominal, vascular surgery. The ability to take a nice shower and snuggle with my handsome husband this morning and help prepare a delicious brunch with friends are all things I am so grateful to be able to do today! Last year on this day I began my long and difficult road to recovery by choosing to correct my compressed renal vein which was causing me extreme pain, a rare condition called the Nutcracker Syndrome. I was not able to eat for days, take a normal shower for months, hug my beloved tightly for at least a month, walk upright for more than a month and many other complications, but all that got me to where I am now: pain-free and healed! And with the utmost gratitude and love for my amazing caregivers during that time, my mom and my now husband. And we have been married 4 months today! <3 So I'm choosing to use this post-op-iversary to relish in all of Life's simple and beautiful joys: hugs, snuggling, showers, brunch & hiking! We hiked to the top of the mountain in celebration this afternoon--to Cougar Mountain! I am so blessed!

A special gift my mom made me after my "Nut"cracker Syndrome surgery last year.